Essay Hemophilia

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All freshmen struggle with newfound freedoms, decision-making, time and money management, and other responsibilities like doing laundry and planning meals—some or all of which were likely done for them at home, says Jim Kessler, director of the Department of Disability Services at the University of North Carolina at Chapel Hill.

For those with a chronic medical condition, adjustments may be even greater.

SALT LAKE CITY — After losing his 18-year-old brother to a bleeding disorder, actor and director Patrick James Lynch harnessed his background as a performer and producer to help young people like his brother who were falling through the cracks.

“For the last five years, my company, (Believe Limited), has been committed to creating programs, events and unique experiences to build (a) community, particularly around young people affected by bleeding disorders,” Lynch said in an interview with the Deseret News.

19 — is thrilled at the opportunity to participate in such an innovative experience.

“I’m excited to spend time with 24 other kids with bleeding disorders and being able to work with these professional directors. to go out of their way and (put) time aside to work with us,” Sperry said.Stay tuned to read the winning essays in the weeks to come., attended two years of community college and lived at home before enrolling at Emerson College in Boston, 3,000 miles away from her family in Washington state.We will be sharing the winning essays with you soon.Joseph Bender (Long Island Regional Winner)Jeannine Cieri (Manhattan Regional Winner)Aviva Gibbs (Brooklyn Regional Winner)Aiden Patsakos (Staten Island Regional Winner)Fara Pavri Porus Pavri Isaiah Santiago Winners attended Dear Evan Hansen on Broadway on January 22nd and will be writing more about their experience soon.“I had a host of really significant challenges with my hemophilia growing up — I was out of school all the time, I was suffering from really bad bleeds often (and) I was missing out on social activities.“A kid who is affected by a bleeding disorder needs other things they can be incentivized to consider as forms of growth and socialization and ways to think outside of their school and prescribed environment," he continued.With the sponsorship of Bio Marin, Lynch will direct the Breaking Through!Musical Theater Intensive, a three-day musical theater workshop in New York City where 25 teens from across the country who suffer from bleeding disorders will participate in a six-song musical titled “Hemophilia: The Musical.” The musical will be live-streamed from their Facebook page on Nov. Lynch explained that this workshop will not only teach performance skills, but he hopes it will also equip kids with management tools so they can feel more comfortable as their own advocate, learning how to speak to school administrators and coaches about their condition.Los Angeles native Arther Scott, 20, who has severe , is content as a freshman at the University of Portland in his Oregon hometown.He has moved out of his parents’ house and now lives with a cousin.


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